Courtney Stinson
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LIFE WITH ELLIE

Adapt your life

Equipment we use in our home.  These are things we've built or adapted to make life with Ellie easier.

ARMS UP PROTOTYPE

$235.00
1 set of arm slings + 1 Arms Up multipurpose frame

​More info:
https://www.savorlifeadapted.com/store/p3/ArmsUp

https://www.savorlifeadapted.com/store/p1/antigravityarmslings
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Get Organized

Download free printables we use in our home to stay on top of Ellie's care.  Just edit to make them your own.

PRINTABLE - Daily Care Log

$0.00
Use MS Excel or Google Sheets to edit this document to your specific needs.  We use these worksheets to keep Ellie's care organized and to communicate with her nurses so we're all on the same page.

Categories included (but can be edited):
  • Equipment maintenance and cleaning schedule
  • Feeding schedule
  • Medication log
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PRINTABLE - Go-Bag Checklist (trach/vent list)

$0.00
We keep a laminated card with all these details in our GO-bag.  What's nice about the laminated version is that we can use dry erase markers on it and use it as a checklist too.  Ours is hole-punched and tied to the zipper so it can't get lost because it's imperative that the GO-bag is always fully stocked in case of emergency.  You can edit the list for your specific needs.
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PRINTABLE - Suction Log (trach)

$0.00
At one point, we were keeping an additional trach suction log because we needed to prove we needed a certain level of nursing care in the home.  This log is also nice so you can look back and see if there are certain trends in schedule and suction needs.
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PRINTALBE - Ventilator Weaning Log

$0.00
Ellie started using a secondary setting on her ventilator to start the (long slow) process of weaning her off her ventilator.  There have several bumps in the road but we're still working hard to be vent-free during the day... some day.  This is a great log to help track how the weaning process is going.  Plus, if you take this with you to your pulmonologist or in our case to Vent Clinic, your health care team will be impressed.  ;)
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Let's Connect!

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Eat. Love. Live.

"She stood in the storm and when the wind did not blow her way, she adjusted her sails."
- Elizabeth Edwards.
"Wherever life plants you, bloom with grace."
​- French Proverb
If you don't go after what you want, you'll never have it.  If you don't ask, the answer is always no.  If you don't step forward, you're always in the same place.
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